Tuesday, March 30, 2010

Rewind

Today, I’m going to rewind just a bit and fill you in on a bit more about the actual day of diagnosis.

When I had the stereotactic biopsy last Monday, they made an appointment for me to return to the breast surgeon/oncologist in seven days to get results. However, when I asked the radiologist how long results usually took to come back she said, “Three to five days with preliminary results coming in even earlier.”

I “hmmm”-ed to myself and did the math. (Which, as we all know, is my strong point. Ha.)

“Let’s see. The doctor is going to have my diagnosis on Wednesday or Thursday, but he isn’t going to tell me the results until Monday? What is wrong with this picture?”

Part of my reason for wanting the news earlier (besides just wanting to know) was because, as pastors of a church, it’s much easier to give news to a congregation as a whole on Sunday morning than to have the news dribble out on Monday and the days following. However, I had been told that this was the doctor’s iron clad policy; he only gave results in person.

But I thought, “What does it hurt to ask?”

Since I do a whole lot better stating my case in writing than over the phone, I composed a letter and faxed it to the doctor’s office early Thursday afternoon listing some reasons for requesting earlier results. I didn’t have much faith that it would do any good, but at least I felt better for having tried.

At 5:30 Thursday afternoon, as I was about to put some chicken in the oven, my cell phone rang.

It was the doctor.

He started the conversation with, “Well, I got your letter. And since you went to the trouble of writing, I’ll make an exception and give you the results over the phone.”

At that point, I suddenly decided that I didn’t really want to hear the results after all. Instead, I wanted to put my fingers in my ears and say, “Nah, nah, nah” so loudly that I wouldn’t be able to hear him. I wanted to shout, “No, no! Tell me Monday! Tell me Monday!”

However, since I figured that a woman shouting “Nah, nah, nah” and “Tell me Monday!” into the phone might be somewhat disconcerting to the good doctor, I managed to keep myself quiet during that wee space of eternity when the smallest of silences preceded the loudest of messages.

He said, “I have good news and I have bad news. The bad news is that you have cancer. The good news is that we caught it early.”

At that moment, I had a strong sense of déjà vu because, for the previous few days, I had kept hearing in my heart, “Good news, bad news. Good news, bad news.” The doctor said exactly what I “knew” he was going to say.

We talked a few minutes more and then I hung up. And gazed unseeingly out the window. And stared at the phone in my hand. And pondered the words that had just entered my ears, my brain, my life, my existence, “You have cancer.”

I didn’t cry right then. I didn’t feel the need to. Instead, I just felt the need to hang on desperately to the numbness that had mercifully accompanied the staggering wave that had just swept through my life.

After a few minutes of standing stock still, alone in the kitchen, I finally gathered up my courage to walk upstairs to tell Steve who had been taking a fifteen minute, pre-dinner nap.

I went into the room and said, “Dr. Habal just called.”

I’ve never see Steve wake up so fast in my whole life. His eyes widened slightly and his expression intensified into a look of fast focus as he looked at me.

And I said simply, “It’s cancer.”

He was off the bed and had his arms around me before I could say anything else; we stood quietly for a few seconds, a few tears finally escaping down my face as I thought of what this news would mean for him as well as for me.

After he and I had talked about ten minutes, we realized the time had come to tell Sarah. Sweet, sweet Sarah, who has fought her own battle with her own cancer monster and won. Sweet, sweet Sarah, whose life would also be irrevocably changed by my words.

I didn’t want to tell Sarah. I wanted to shield her from the news. I wanted her mommy to be healthy and “there” for her every moment she might need me. I knew that the diagnosis would mean times spent away from her, times that I wouldn’t feel well, times when I wouldn’t always have the energy to see to her needs.

And I just didn’t want to say the words; I didn’t want to face the scenarios that my words would usher in. But it had to be done.

She was upstairs in her third floor aerie, puttering around in blissful ignorance when Steve called her down to our bedroom. When she walked into the room I quietly said, “Sarah, honey. You and I are now part of the same club.”

It took half a second for the meaning of the words to sink in. Her face crumpled into tears and she said, “Oh, Mom. Oh, no!”

And then I stood up to gather her into my arms. She cried, and I cried, and Steve stood with his arms around us both, praying for us. Praying for himself. Praying for us all. Praying for grace and peace and strength for the journey.

And as tears and love flowed through the room, we truly did feel at peace; we truly did feel that the difficult road ahead of us would be paved with grace.

After about ten minutes, we were able to talk about it a little and--in true Smith Family Fashion—even find a few things to laugh about. Because you know what? Sometimes laughter is just as healing as tears.

We tried calling Nathan but ended up just having to leave voice mail. He called back about 7 pm, just as he was going into his church to play drums for a college group meeting. When I shared the news with him, he was so sensitive and calm and compassionate. He asked the sorts of questions that I never dreamed a 20-year old College Dude would think to ask. He peered right into my heart and said the things I needed to hear. I hung up the phone feeling loved and cared for, and so very grateful for the amazing person my man child had become.

And in a wonderful “quirk” of timing, Nathan will actually be flying home this weekend for two days. Our regular drummer is going to be out of town on Easter, and since that’s a big service for us, we didn’t want to go without a drummer. The church had already made plans to bring Nathan in, not ever dreaming that when the flight was scheduled, he would arrive just a few days after my cancer diagnosis. It will be wonderful to be together as a family, if only for a few hours.

Today’s exciting medical plans include a visit to my new pulmonologist. I actually had an appointment scheduled with him three weeks ago but had to re-schedule; their next available appointment just happened to be today.

That is such perfect timing because we’re coming to realize that part of our decision making process for treatment will include how various sorts of treatment will affect my lungs. For instance, the breast doctor said that radiation can affect the lungs and the plastic surgeon said there are certain kinds of reconstruction (if I decide to go that route) which are not recommended for patients with COPD. And so to have a pulmonology appointment already scheduled during the very week we’re having to make big decisions is incredible timing.

Of course, pulmonology appointments always make me a bit nervous in themselves, because I’m always worried about whether the annual tests will show further decrease in lung capability. (For new readers: I have COPD and my lung capacity is currently about 60% of normal.)

So while I’m not overly thrilled to be going to yet another doctor’s appointment, I am thrilled about the way the timing worked out. It couldn’t be any more perfect.

And do you what’s even more perfect? The pulmonologist’s office is right across the street from my favorite thrift store.

I’m a happy woman.

Follow Up To Yesterday's Post

I'm up early this morning (5:15 am) and was reading a few more of your wonderful "heart messages." As I was reading, a certain theme cropped up a few times and I thought, "Hmmm. I must have written something misleading."

When I went back to my original post, I realized what it was. (I'm make a little correction there, so it's clear for future readers.)

When I go for the MRI Wednesday, it's not to determine whether or not I'm in the 20% that are misdiagnosed as NOT having cancer. The reason for the MRI is to determine whether or not I'm in the 20% whose cancer is worse than the original biopsy seemed to indicate, i.e, whether it's spread to any other places in the breast.

As much as I'd love to think there is a chance I really don't have cancer, that is not the case. I have definitely been diagnosed with breast cancer. They're just trying to ascertain right now what stage it is which will help determine the treatment.

I'm sorry for any "misinformation" there; we can chalk it up to a tired,under-rested, overwhelmed, chocolate-deprived brain!

More later . . .

Monday, March 29, 2010

Oh My.

“Oh my.”

That just about sums up my first official day in Cancer World. I am exhausted and overwhelmed and quite sure that I will never be able to make the proper decisions about any of this. So much information to consider! So many scary words! And pictures! And descriptions! And appointments! And procedures! And outcomes! And complexities! And side effects!

It’s. Just. Too. Much.

When Steve and I left this morning (at 7:30 am) I was freshly showered, freshly made up, and freshly rested. And besides, some friends had given me a wonderful gift that brought a big smile to my face. I was feeling relatively perky and even positive enough to ham it up a little for the camera.

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At 5:30 this evening? With the chocolate exchanged for a cancer book? Not so much.

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Is that a pitiful face, or what?

On the bright side, I was incredibly blessed, encouraged, and happy-fied by all of the messages left for me—here and on Facebook. I am overwhelmed (in a good way, this time) with the support I feel flooding in from all over everywhere.

I’m a bit too discombobulated to go into a lot of detail tonight but I will say that on Wednesday, I am scheduled for an MRI. At least 20% of all early stage diagnoses are proved wrong when an MRI is done. (Meaning those cancers are actually worse than originally diagnosed.) Especially, since I’ve had so much “weirdness” going on for so many years, they want to be absolutely sure of what they’re dealing with before going into surgery.

Next Tuesday, Steve and I will make the 4 1/2 hour round trip back to Greenville (it will be the fifth trip by one or both of us) to get the MRI results, meet again with the breast surgeon and plastic surgeon (we met with both of them already today) and come up with a plan of treatment.

Tonight my brain is mush and the only treatment worth considering is a “rescue dose” of chocolate. And then a large application of a warm, soft bed. And then a prescription for at least ten hours of sleep. Followed by a brief dip into the waters of denial before I delve into all the books, brochures and information I’ve been given and hope that my brain will turn out a coherent thought.

Before I close, Steve, Sarah, Nathan and I want to thank you for your prayers, love, and virtual hugs. I have read every comment that has come in. Some I’ve cried over, some I’ve laughed over. And every single one has been appreciated more than you could ever know.

I’ll be back tomorrow . . .

Sunday, March 28, 2010

Bad News. Good News. Cancer News.

The surgeon called earlier than expected with biopsy results.

The bad news is that I have breast cancer.

The good news is that it was caught early.

It will still require fairly aggressive treatment which won’t be any fun, but at least the cancer is treatable.

Steve and I will leave early tomorrow morning for a long session with the surgeon about treatment possibilities. So far the options he’s mentioned by phone have been a lumpectomy followed by radiation OR a mastectomy. I'll try to fill you in on a few more things when we get back home tomorrow.

Also, I'll be having an MRI soon to be make sure it hasn’t spread.

I didn’t want to write about the diagnosis here until we had informed our church family, which is why there’s been a slight delay in posting it here since receiving the news.

We’re doing okay.

Taking deep breaths.

Getting ready for this new (scary, tear-producing, grace-revealing) season of our lives.

Friday, March 26, 2010

March 2009

It’s always fun to look back occasionally and see what we were doing exactly a year ago. Here is the Smith Family, circa 2009.

We start with the happy photo of me at the Ear, Nose and Throat doctor, preparing to have a lovely little “camera on a wire” stuck up my nose and back down my throat. I’m only smiling in this picture because the doctor was just posing for the camera; he had not yet begun the real business of making me cry, gag, and threaten to choke him.

vocal machine

I’m in a happier state here, celebrating my 47th birthday with friends.

becky smile

Here is the table we served our friends at for my birthday. Note the paper towel flower holder. Hey, when you’re classy you’re classy!

The reason for the newspaper is that we were serving a wonderful, tasty, messy shrimp dish where the guests were invited to peel the shrimp with their fingers and throw the shells on the table.

Which they did. Which is the reason for the newspaper. And the paper towels.

birthday table

And here is the table that our friends walked by to get to the classy newspaper table! (We kept our dining room table set all the time back then since we were showing our house.)

real birthday table

And this is the cheesecake that Steve and Sarah made for my birthday. From scratch. By hand! (They made it and I decorated it.)

bithday pie

A Smith Fam Collage that I was messing around with in March. (Even though the pictures were taken earlier.)

fam collage

Shortly after Nathan got back from five weeks in Jerusalem, he and a college roommate went to Colorado to ski. And also to climb rocks and make their mothers nervous.

nate climbing

When he finally got home from all his adventures, Steve and I were very glad.

nathan home1

In other news, Sarah’s story was featured in our local paper.

newspaper

And Sarah showed off her polka dotted school outfit.

polka dot outfit

March was also a month of some painful tests for her. Here she is after an EEG. (A nerve conduction study having to do with electricity. NOT a fun thing.)

sarah crying

This is one of my favorite pictures of her; it’s right after the test was over and she was dressed to go. I love the look of calm, peaceful courage on her face.

sarah after

In happier times.

sarah blog

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From the Comments Area:

Holly let me know that I had left off the measurement unit on the chicken recipe I posted yesterday; I just went back in and added “Cups” to those measurements. Thanks, Holly, for letting me know.

Judy asked if the word “Welcome” over the door was a new addition.

Yes, indeedy it is, and thanks for noticing! It’s actually stick on letters that we found one day for about 80% off. I had been wanting something to put in that space and that was the perfect thing.

Here is a little better view of it.

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And I must say that I continue to be in a veritable state of dismay and distress over all the “Bed, Beth, Bath, Beyond” comments that have come in over my little, tiny, miniscule spelling error.

Jan Reynolds said, “Okay since Sue G. pointed it out to begin with... it didn't say Bed, Beth and Beyond... It said Beth, Beth and Beyond! I thought maybe you had taken a pain pill or something since it was right after your biopsy...”

Kim said, I noticed the Beth, Beth and Beyond as well....and since there were two "Beths"..I figured there was a store I had just not heard of before, ...and not just a spelling mistake ! LOL :) This is such a fun place to come.

Sue said, “You wrote that you wandered into "Beth, Beth and Beyond." So, in your rush to organize even names of major companies, you made both Bed and Bath Beth, thereby conserving energy and word usage. Smart girl.”

Ahh. I think I like Sue’s “take” on this the best. I am not a mistake-makin’ ninny.

I’m a smart girl.

And on that lovely thought, I shall close.

Thursday, March 25, 2010

Not One Recipe, But Two! (Teriyaki Chicken/Chocolate Eclair Torte)

A couple weeks ago, I promised I would post the recipe I made for Steve’s parents when they were visiting. Yesterday, I got an email from Tracy R. who was writing to tactfully remind me that I hadn't posted the promised chicken recipe yet. (Nice to know that my readers are paying such close attention!)

So--here is the recipe, complete with pictures that I actually remembered to take in the midst of the Official Chicken Cooking Process. And because Tracy asked so nicely, I’m also including the Chocolate Éclair Torte recipe she asked about.

So. Wash your hands, don your chef’s hat, break out a bottle of bubbly (in my case, Diet Mountain Dew) and let’s get cookin’!

Teriyaki Chicken

2 T vegetable oil

6 boneless, skinless chicken breasts

1/2 Cup teriyaki sauce

1/2 Cup ranch dressing (lite is fine)

1 Cup shredded Cheddar

Bacon bits

1. Pre-heat oven to 350 degrees.

2. Put all the chicken in a large Ziploc bag (in one layer) and use a meat mallet to pound the chicken. Pound and pound. Then turn the bag over and pound and pound some more. This is a good opportunity to take out all your frustrations and also get back at the 3rd grade bully who always made your life so miserable.

Feel better now?

Okay. Good. (And by the way, do NOT skip the pounding step. It makes a big difference in how tender the chicken turns out.)

3. Heat oil over medium heat. Add chicken breasts, season with salt and pepper, and sauté’ each side for 4-5 minutes until browned.

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I was so excited to take this picture because I’ve never used this particular utensil for much of anything until occurred to me that I could use it for flippin’ chicken. I felt very accomplished as a cook when I put it to such good use. (I realize it’s probably a salad server but you know me. I like finding uses for things that are completely illogical.)

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4. Place browned chicken in 9x13 baking dish. Brush with teriyaki sauce.

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5. Spoon on ranch dressing.

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6. Take picture of Helpful Assistant to the Cook Canine.IMG_1879

7. Sprinkle chicken with cheese and bacon bits.

8. Bake for 25-30 minutes until juices run clear.

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9. Serve. Eat. Say, “Yum.”

Then post a miscellaneous picture of your house, just because you found it on your computer in a random search.

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And now, the moment we’ve all been waiting for! The CHOCOLATE recipe. Anyone who knows me very well knows that I love and adore any food that has to do with graham crackers. In fact, one of my favorite snacks is to break graham crackers into pieces, put them in a bowl and pour milk over them.

So you can see why this dessert is pretty high up on my list of wondrous creations.

Chocolate Éclair Torte

  • 2 packages of graham crackers
  • 2 (3.5 ounce) packages instant vanilla pudding mix
  • 3 cups milk
  • 1 (16 ounce) package frozen whipped topping, thawed
  • 1 (16 ounce) package prepared chocolate frosting (or you can make your own)

1. Line the bottom of a 9x13 inch baking pan with graham crackers.

2. In a large bowl, combine the milk and vanilla pudding according to directions on box. Fold in the whipped topping.

3. Spread a layer of the pudding mixture over the graham crackers.

4. Alternate the graham cracker and pudding layers up to the top of the pan.

5. Cook the container of prepared frosting, uncovered in the microwave for 1 minute on half power. Pour over the top of the cake. Refrigerate for at least 5-7 hours before serving.

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From the comments area:

Q. Kristin asked, “Was that a roll of tape hanging above the ironing board desk?”

A. Kristen, you get the award for having an eagle eye. Yes, that is actually some hemming tape I tried to use on an article of clothing. I kept on laying it down and misplacing it so I finally stuck it up there so I could keep an eye on it.

Maybe we could just call it a “decorative accent.”


Q. Jan asked, “So what do you iron on?”

A. Jan, fortunately the ironing board only serves as the Ironing Board Desk for a fairly brief amount of time each week. Since the ironing board is in the home office (with the desk and the printer) I carry my lap top in there and put it on the ironing board whenever I have to print anything. And since I deal with lots of pages of music each week for our church, I have found a long surface like that is perfect for sorting through things.

But once the printing and sorting are done? It’s back to being an ironing board!

Sue G. said, “Bed, Beth and Beyond?” A cousin of “Bed, Bath and Beyond?”

A. Trust Sue, the editor extraordinaire to catch me in the act of misspelling “Bath.” And yes, “Beth” and “Bath” ARE first cousins. At least when I’m doing the writing!